Global Patient Registry of Inherited Retinal Diseases (EYERD Registry)
Last Updated September 4, 2024
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CR109326
OVERVIEW
-
Sexes Eligible for Study
all -
Age
years -
Phase
phase 22 -
Sites
Sites -
Status
Recruiting
SUMMARY
The purpose of this study is to better understand the natural history of Inherited Retinal Disease (IRD) and help inform patient management.
CONDITIONS
- Inherited Retinal Diseases
ELIGIBILITY
Inclusion Criteria:
For Participant Selection:
* Participant has any clinically documented sign(s) and/or symptom(s) consistent with an Inherited Retinal Disease (IRD), or asymptomatic with documented retinal changes detected by imaging or electrophysiology
* Participant ha
DETAILS
LOCATIONS
| Country (14) | City or Province (42) | Status |
| United States | Birmingham University of Alabama Birmingham |
RECRUITING
|
| United States | Little Rock University of Arkansas for Medical Sciences |
RECRUITING
|
| United States | Los Angeles University of Southern California |
RECRUITING
|
| United States | Iowa City University of Iowa |
RECRUITING
|
| United States | New Orleans Ochsner Medical Center |
RECRUITING
|
| United States | Baltimore John Hopkins Hospital |
RECRUITING
|
| United States | Ann Arbor Univ of Michigan Medical Center |
RECRUITING
|
| United States | Minneapolis University Of Minnesota Medical Center |
RECRUITING
|
| United States | Cleveland Cleveland Clinic |
RECRUITING
|
| United States | Pittsburgh UPMC |
RECRUITING
|
| United States | Bellaire Retina Consultants of Texas |
RECRUITING
|
| United States | Houston Baylor College of Medicine |
RECRUITING
|
| United States | Houston University of Texas Houston |
RECRUITING
|
| Austria | Linz Kepler Universitätsklinikum GmbH |
RECRUITING
|
| Austria | Vienna Medizinische Universitat Wien |
RECRUITING
|
| Brazil | Belo Horizonte INRET Clínica e Centro de Pesquisa |
RECRUITING
|
| Brazil | São Paulo Instituto De Genetica Ocular |
RECRUITING
|
| Canada | Toronto Sunnybrook Health Sciences Center |
RECRUITING
|
| Denmark | Glostrup Rigshospitalet Glostrup |
RECRUITING
|
| France | Montpellier CHU Montpellier |
RECRUITING
|
| France | Nantes CHU Nantes |
RECRUITING
|
| France | Paris Centre Hospitalier National d'Ophtalmologie des Quinze-Vingts |
RECRUITING
|
| Germany | Bonn Universitatsklinikum Bonn |
RECRUITING
|
| Israel | Ramat Gan The Chaim Sheba Medical Center |
RECRUITING
|
| Italy | Firenze Azienda Ospedaliero Universitaria Careggi |
RECRUITING
|
| Italy | Milano ASST Santi Paolo e Carlo |
RECRUITING
|
| Italy | Roma IRCCS Fondazione G.B. Bietti per lo Studio e la Ricerca in Oftalmologia ONLUS |
RECRUITING
|
| South Korea | Gyeonggi-do Seoul National University Bundang Hospital |
RECRUITING
|
| South Korea | Seoul Severance Hospital |
RECRUITING
|
| South Korea | Seoul Samsung Medical Center |
RECRUITING
|
| Spain | Donostia-San Sebastián Hosp. Univ. Donostia |
RECRUITING
|
| Spain | Madrid Hosp Univ Fund Jimenez Diaz |
RECRUITING
|
| Spain | Madrid Hosp. Univ. 12 de Octubre |
RECRUITING
|
| Spain | Sevilla Hosp. Virgen Macarena |
RECRUITING
|
| Switzerland | Basel University Hospital Basel, Eye Clinic/Institute of Molecular and Clinical |
RECRUITING
|
| United Kingdom | Cardiff University Hospital Wales |
RECRUITING
|
| United Kingdom | Southampton University Hospital Southampton NHS Foundation Trust |
RECRUITING
|
| United Kingdom | Sunderland Sunderland Eye Infirmary |
RECRUITING
|
| China | Beijing Beijing Tongren Hospital CMU |
RECRUITING
|
| China | Beijing Peking Union Medical College Hospital |
RECRUITING
|
| China | Shanghai Eye and ENT Hospital of Fudan University |
RECRUITING
|
| Italy | Milano Ospedale San Raffaele |
RECRUITING
|
33.52066, -86.80249
34.74648, -92.28959
34.05223, -118.24368
41.66113, -91.53017
29.95465, -90.07507
39.29038, -76.61219
42.27756, -83.74088
44.97997, -93.26384
41.4995, -81.69541
40.44062, -79.99589
29.70579, -95.45883
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29.76328, -95.36327
48.30639, 14.28611
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-19.92083, -43.93778
-23.5475, -46.63611
43.70011, -79.4163
55.6666, 12.40377
43.61092, 3.87723
47.21725, -1.55336
48.85341, 2.3488
50.73438, 7.09549
32.08227, 34.81065
43.77925, 11.24626
45.46427, 9.18951
41.89193, 12.51133
37.58944, 126.76917
37.566, 126.9784
37.566, 126.9784
43.31283, -1.97499
40.4165, -3.70256
40.4165, -3.70256
37.38283, -5.97317
47.55839, 7.57327
51.48, -3.18
50.90395, -1.40428
54.90465, -1.38222
39.9075, 116.39723
39.9075, 116.39723
31.22222, 121.45806
45.46427, 9.18951
Indicates 50+ sites in this region: click to zoom in.
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Indicates < 10 sites in this region: click to zoom in.
Corresponds to individual site.