Global Patient Registry of Inherited Retinal Diseases (EYERD Registry)
Last Updated May 22, 2025
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CR109326
OVERVIEW
-
Sexes Eligible for Study
all -
Age
years -
Phase
-
Sites
Sites -
Status
Recruiting
SUMMARY
The purpose of this study is to better understand the natural history of Inherited Retinal Disease (IRD) and help inform patient management.
CONDITIONS
- Inherited Retinal Diseases
ELIGIBILITY
Inclusion Criteria:
For Participant Selection:
* Participant has any clinically documented sign(s) and/or symptom(s) consistent with an Inherited Retinal Disease (IRD), or asymptomatic with documented retinal changes detected by imaging or electrophysiology
* Participant ha
DETAILS
LOCATIONS
Locations in:
United States, Brazil, Canada, Denmark, France, Germany, Israel, Italy, South Korea, Spain, Switzerland, United Kingdom, China, Australia, Austria, Belgium, Finland, Japan
| Country (18) | City or Province (71) | Status |
| United States | Birmingham University of Alabama Birmingham |
RECRUITING
|
| United States | Little Rock University of Arkansas for Medical Sciences |
RECRUITING
|
| United States | Los Angeles University of Southern California |
RECRUITING
|
| United States | Iowa City University of Iowa |
RECRUITING
|
| United States | New Orleans Ochsner Medical Center |
RECRUITING
|
| United States | Baltimore John Hopkins Hospital |
RECRUITING
|
| United States | Ann Arbor Univ of Michigan Medical Center |
RECRUITING
|
| United States | Minneapolis University Of Minnesota Medical Center |
RECRUITING
|
| United States | Cleveland Cleveland Clinic |
RECRUITING
|
| United States | Pittsburgh UPMC |
RECRUITING
|
| United States | Bellaire Retina Consultants of Texas |
RECRUITING
|
| United States | Houston Baylor College of Medicine |
RECRUITING
|
| United States | Houston University of Texas Houston |
RECRUITING
|
| Brazil | Belo Horizonte INRET Clínica e Centro de Pesquisa |
RECRUITING
|
| Brazil | São Paulo Instituto De Genetica Ocular |
RECRUITING
|
| Canada | Toronto Sunnybrook Health Sciences Center |
RECRUITING
|
| Denmark | Glostrup Rigshospitalet Glostrup |
RECRUITING
|
| France | Montpellier CHU Montpellier |
RECRUITING
|
| France | Nantes CHU Nantes |
RECRUITING
|
| France | Paris Centre Hospitalier National d'Ophtalmologie des Quinze-Vingts |
RECRUITING
|
| Germany | Bonn Universitatsklinikum Bonn |
RECRUITING
|
| Israel | Ramat Gan The Chaim Sheba Medical Center |
RECRUITING
|
| Italy | Firenze Azienda Ospedaliero Universitaria Careggi |
RECRUITING
|
| Italy | Milano ASST Santi Paolo e Carlo |
RECRUITING
|
| Italy | Roma IRCCS Fondazione G.B. Bietti per lo Studio e la Ricerca in Oftalmologia ONLUS |
RECRUITING
|
| South Korea | Gyeonggi-do Seoul National University Bundang Hospital |
RECRUITING
|
| South Korea | Seoul Severance Hospital |
RECRUITING
|
| South Korea | Seoul Samsung Medical Center |
RECRUITING
|
| Spain | Donostia-San Sebastián Hosp. Univ. Donostia |
RECRUITING
|
| Spain | Madrid Hosp Univ Fund Jimenez Diaz |
RECRUITING
|
| Spain | Madrid Hosp. Univ. 12 de Octubre |
RECRUITING
|
| Spain | Sevilla Hosp. Virgen Macarena |
RECRUITING
|
| Switzerland | Basel University Hospital Basel, Eye Clinic/Institute of Molecular and Clinical |
RECRUITING
|
| United Kingdom | Cardiff University Hospital Wales |
RECRUITING
|
| United Kingdom | Southampton University Hospital Southampton NHS Foundation Trust |
RECRUITING
|
| United Kingdom | Sunderland Sunderland Eye Infirmary |
RECRUITING
|
| China | Beijing Beijing Tongren Hospital CMU |
RECRUITING
|
| China | Beijing Peking Union Medical College Hospital |
RECRUITING
|
| China | Shanghai Eye and ENT Hospital of Fudan University |
RECRUITING
|
| Italy | Milano Ospedale San Raffaele |
RECRUITING
|
| United States | San Francisco UCSF |
RECRUITING
|
| United States | Miami Bascom Palmer Eye Institute |
RECRUITING
|
| United States | Atlanta Emory University |
RECRUITING
|
| United States | Rochester University of Rochester Medical Center |
RECRUITING
|
| United States | Portland Oregon Health And Science University |
RECRUITING
|
| Australia | East Melbourne Centre for Eye Research Australia |
RECRUITING
|
| Australia | Nedlands Lions Eye Institute |
RECRUITING
|
| Australia | Westmead Sydney Children's Hospital |
RECRUITING
|
| Austria | Vienna Medizinische Universitaet Wien |
RECRUITING
|
| Belgium | Gent Ghent University Hospital |
RECRUITING
|
| Brazil | Pinheiros On Oftalmologia LTDA |
RECRUITING
|
| Brazil | Sao Paulo Clinica Oftalmologica Sao Lucas |
RECRUITING
|
| China | Beijing Beijing Children's Hospital, Capital Medical University |
RECRUITING
|
| China | Guangzhou Sun YatSen University, Zhongshan Ophthalmic Center |
RECRUITING
|
| China | Shanghai Shanghai General Hospital |
RECRUITING
|
| China | Shanghai Xin Hua Hospital Affiliated to Shanghai Jiao Tong University School of Medicine |
RECRUITING
|
| China | Shanghai Shanghai Aier Eye Hospital |
RECRUITING
|
| Finland | Helsinki Helsingin Yliopistollinen Keskussairaala |
RECRUITING
|
| France | Paris Hôpital Necker-Enfants Malades |
RECRUITING
|
| Israel | Tel Aviv Tel Aviv Sourasky Medical Center |
RECRUITING
|
| Italy | Roma Policlinico Universitario Agostino Gemelli |
RECRUITING
|
| Japan | Meguro-ku National Hospital Organization Tokyo Medical Center |
RECRUITING
|
| Spain | Barcelona Hosp. Univ. de Bellvitge |
RECRUITING
|
| Spain | Barcelona Hosp. Sant Joan de Deu |
RECRUITING
|
| Switzerland | Lausanne Universite de Lausanne, Hopital ophtalmique Jules-Gonin |
RECRUITING
|
| United Kingdom | Hull Hull University Teaching Hospitals NHS Trust |
RECRUITING
|
| United Kingdom | Leeds Leeds Teaching Hospitals NHS Trust |
RECRUITING
|
| United Kingdom | Liverpool Royal Liverpool University Hospital |
RECRUITING
|
| Austria | Linz Kepler Universitatsklinikum GmbH |
RECRUITING
|
| France | Srasbourg Hopitaux universitaires de Strasbourg |
RECRUITING
|
| Italy | Ferrara Arcispedale S. Anna Ferrara |
RECRUITING
|
Geo Locations
33.52066, -86.80249
34.74648, -92.28959
34.05223, -118.24368
41.66113, -91.53017
29.95465, -90.07507
39.29038, -76.61219
42.27756, -83.74088
44.97997, -93.26384
41.4995, -81.69541
40.44062, -79.99589
29.70579, -95.45883
29.76328, -95.36327
29.76328, -95.36327
-19.92083, -43.93778
-23.5475, -46.63611
43.70011, -79.4163
55.6666, 12.40377
43.61092, 3.87723
47.21725, -1.55336
48.85341, 2.3488
50.73438, 7.09549
32.08227, 34.81065
43.77925, 11.24626
45.46427, 9.18951
41.89193, 12.51133
37.58944, 126.76917
37.566, 126.9784
37.566, 126.9784
43.31283, -1.97499
40.4165, -3.70256
40.4165, -3.70256
37.38283, -5.97317
47.55839, 7.57327
51.48, -3.18
50.90395, -1.40428
54.90465, -1.38222
39.9075, 116.39723
39.9075, 116.39723
31.22222, 121.45806
45.46427, 9.18951
37.77493, -122.41942
25.77427, -80.19366
33.749, -84.38798
43.15478, -77.61556
45.52345, -122.67621
-37.81667, 144.9879
-31.98184, 115.8073
-33.80383, 150.98768
48.20849, 16.37208
51.05, 3.71667
-29.78333, -52.73333
-23.5475, -46.63611
39.9075, 116.39723
23.11667, 113.25
31.22222, 121.45806
31.22222, 121.45806
31.22222, 121.45806
60.16952, 24.93545
48.85341, 2.3488
32.08088, 34.78057
41.89193, 12.51133
42.12755, 143.31736
41.38879, 2.15899
41.38879, 2.15899
46.516, 6.63282
53.7446, -0.33525
53.79648, -1.54785
53.41058, -2.97794
48.30639, 14.28611
48.5734053, 7.7521113
44.83804, 11.62057
x
50
Indicates 50+ sites in this region: click to zoom in.
10
Indicates 10+ sites in this region: click to zoom in.
5
Indicates < 10 sites in this region: click to zoom in.
Corresponds to individual site.